Chordoma Foundation

Category Archives: Uncommon Stories

Uncommon stories

You don’t have to face chordoma alone. Our welcoming and supportive community of patients and their loved ones have shared what they’ve learned throughout their journeys so that you can know what you might expect throughout your own. Below you will find the Uncommon Stories of people who are determined not to let chordoma define them. 

You can give hope to others in the chordoma community by sharing the story of your own journey. Joined together in our Uncommon Cause, we can find the hope and strength to continue our search for a cure. 

Share your Uncommon Story »


An unexpected champion: Jeff Schilling’s story

Jeff Schilling never expected to be the kind of person who openly shared his experiences with cancer, and he certainly never planned to do it in front of an entire bowling alley full of people.
When Jeff was first diagnosed with chordoma 18 years ago, he didn’t even want to talk about it. At 25 years old, he wasn’t about to let the fact that he had a rare cancer define him or change how people saw him. Continue reading

Iron-maniac: Chordoma Champion racing 10 Ironman triathlons in 10 days

When Kenny Brighton joined the Chordoma Foundation in 2019, his off hours were spent in training mode: preparing for a race involving 10 Ironman triathlons in 10 days. Then came the pandemic; race cancellations followed. Rather than let his preparation go to waste, Kenny decided to pivot, taking the event into his own hands — and legs. As we speak, he’s in the midst of a one-man “Ironman x 10” in the balmy Florida beach town where he grew up. Over 10 consecutive days, he’ll run, bike, and swim a mind-blowing total of 1,400 miles. Continue reading



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