Category Archives: Events
On April 7, we hosted the first webinar in this year’s Virtual Chordoma Community Conference (CCC) Series, entitled Options for Comprehensive Pain Management. We know from your responses to our ongoing Chordoma Survivorship Survey that most chordoma patients and survivors experience pain at some point along their journey with the disease and, for many, that pain can be chronic or long-lasting. But you don’t have to accept pain as a normal part of having chordoma. Pain can be managed, and it is your right to get treatment for it. Continue reading
In 2021, we are excited to host a Virtual Chordoma Community Conference (CCC) Series featuring webinars about some of the most common quality of life challenges you face. Continue reading
Chordoma caregiver and fundraiser Noreen Potempa gave an inspiring talk at our Chordoma Community Conference at Northwestern Medicine in Chicago … Continue reading
On June 8th, more than 90 patients and caregivers from 21 states gathered in Chicago for our 2019 Chordoma Community … Continue reading
In March of 2018, 140 doctors and scientists from more than ten countries and 70 institutions braved a nor’easter to … Continue reading
Our 2018 International Chordoma Community Conference in Boston brought together more than 100 patients, family members, doctors, and researchers from … Continue reading
Nearly 60 patients, caregivers, doctors, and researchers from 16 states gathered at our Chordoma Community Conference at MD Anderson Cancer Center … Continue reading
Registration is now open for our 2018 International Chordoma Community Conference. Join us at the Boston Marriott Cambridge Hotel beginning the … Continue reading
As a patient-driven organization, our success depends on the initiative of supporters like you. Over the years, the Foundation has … Continue reading
Registration is now open for the 2017 Chordoma Community Conference at MD Anderson Cancer Center. This year’s regional conference will … Continue reading
