Chordoma Foundation

Category Archives: Events

Upcoming events that patients, researchers or physicians may be interested in attending.

2021 Virtual Chordoma Community Conference: Coping with anxiety, depression, and grief

During the webinar, Jennifer Bires, LCSW, OSW-C, Executive Director of Life with Cancer and Patient Experience at Inova Schar Cancer Institute, and Megan Whetstone, LCSW, an oncology social worker with the Kelsey-Seybold Cancer Center, discussed: common mental health challenges experienced by cancer survivors and co-survivors, ways to manage and cope with these challenges, what type of support is available, and how to get help for yourself or your loved one.
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2021 Virtual Chordoma Community Conference: Dealing with cancer-related fatigue

On June 2, we hosted the second webinar in our 2021 Virtual Chordoma Community Conference (CCC) Series: entitled Dealing with cancer-related fatigue. Fatigue is an extreme feeling of tiredness or lack of energy not caused by a specific activity, and it is one of the most common side effects of cancer treatment. From responses to our ongoing Chordoma Survivorship Survey, we know that nearly 60 percent of chordoma patients and survivors have experienced fatigue since being treated. Continue reading

2021 Virtual Chordoma Community Conference: Options for comprehensive pain management

On April 7, we hosted the first webinar in this year’s Virtual Chordoma Community Conference (CCC) Series, entitled Options for Comprehensive Pain Management. We know from your responses to our ongoing Chordoma Survivorship Survey that most chordoma patients and survivors experience pain at some point along their journey with the disease and, for many, that pain can be chronic or long-lasting. But you don’t have to accept pain as a normal part of having chordoma. Pain can be managed, and it is your right to get treatment for it. Continue reading

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