The One in a Million Benefit: Helping give others with chordoma a future
Chordoma caregiver and fundraiser Noreen Potempa gave an inspiring talk at our Chordoma Community Conference at Northwestern Medicine in Chicago … Continue reading
Category Archives: Featured Champions
Create your own Facebook fundraiser to support the chordoma community
Five easy steps to start a Facebook Fundraiser Click Fundraisers in the left menu of your Facebook News Feed Click … Continue reading
The hope I have is because of you
As I write today, I am twelve years distant from my initial diagnosis of chordoma. At the time, the news … Continue reading
You’re not alone. We’re on your team. Meet the members of #TeamChordoma
“I know that the race will be jovial and meaningful because it will be a connected experience for all of … Continue reading
Join me in unlocking progress toward better treatments
I’ve always been an optimist. It’s just who I am. As a retired kindergarten teacher and grandmother of eight, it … Continue reading
Veteran cycler and chordoma survivor advance cutting-edge chordoma research at Dana-Farber Cancer Institute
In their nearly 30 years of friendship, Todd Balf and Chris McKeown have cycled thousands of miles together. From treks … Continue reading
Community fundraisers turn passion into action
As a patient-driven organization, our success depends on the initiative of supporters like you. Over the years, our amazing community … Continue reading
Chordoma is a solvable problem. Join me in being part of the solution.
I was a high school senior when chordoma blindsided me. It hit me at a point in my life when … Continue reading
Together we can solve chordoma
Nearly six years ago, we heard the words that would completely change our lives: “you have chordoma.” It didn’t seem … Continue reading
Putting the “Pro” in Pro Bono: Smith, Anderson, Blount, Dorsett, Mitchell & Jernigan, LLP
Kerry Shad was already a nationally recognized employment law and litigation attorney by 2007, but off the clock, she was … Continue reading