Community fundraisers turn passion into action
As a patient-driven organization, our success depends on the initiative of supporters like you. Over the years, our amazing community … Continue reading
Category Archives: Featured Champions
Together we can solve chordoma
Nearly six years ago, we heard the words that would completely change our lives: “you have chordoma.” It didn’t seem … Continue reading
Putting the “Pro” in Pro Bono: Smith, Anderson, Blount, Dorsett, Mitchell & Jernigan, LLP
Kerry Shad was already a nationally recognized employment law and litigation attorney by 2007, but off the clock, she was … Continue reading
An experimental treatment changed the life of a courageous young chordoma survivor
As the youngest child in a family of California dairy farmers, Frankie Fernandes was used to waking up early. But … Continue reading
Peer power: Two Guides, dozens of life-changing relationships
Since 2011, our Peer Connect Program has united the chordoma community and fostered life-changing relationships between individuals affected by this … Continue reading
New initiative in Canada advances research, builds community
Since its inception, the Chordoma Foundation has made great strides toward optimizing chordoma standard-of-care guidelines and initiating critical research in … Continue reading
Maureen Schroer: Helping others to find their silver lining
It was an average Friday in March of 2012, and Maureen Schroer was rushing through her typical weekday routine. After … Continue reading
Surprise birthday celebration brings together friends, family, and fire-breathing belly dancers to raise money for chordoma research
It wasn’t a typical birthday party. When Daniel Kalenov arrived for a celebration of his 40th, he knew he’d be … Continue reading
Grateful for life-saving support, couple embarks on mission to champion research for others
Michael and Noreen Potempa had just retired and were looking forward to the next chapter in their lives together when … Continue reading
To counter “helpless” feeling, wife joins the effort to solve the chordoma puzzle for her husband and other families
When Brittany and Todd Fuchs first started dating, Todd’s battle with chordoma felt like a part of his past. He … Continue reading