The One in a Million Benefit: Helping give others with chordoma a future
Chordoma caregiver and fundraiser Noreen Potempa gave an inspiring talk at our Chordoma Community Conference at Northwestern Medicine in Chicago … Continue reading
Category Archives: Featured Champions
Create your own Facebook fundraiser to support the chordoma community
Five easy steps to start a Facebook Fundraiser Click Fundraisers in the left menu of your Facebook News Feed Click … Continue reading
The hope I have is because of you
As I write today, I am twelve years distant from my initial diagnosis of chordoma. At the time, the news … Continue reading
You’re not alone. We’re on your team. Meet the members of #TeamChordoma
“I know that the race will be jovial and meaningful because it will be a connected experience for all of … Continue reading
Join me in unlocking progress toward better treatments
Double your impact! Thanks to the generosity of an anonymous donor, gifts made before Dec. 31, 2018 will be matched dollar-for-dollar up … Continue reading
Veteran cycler and chordoma survivor advance cutting-edge chordoma research at Dana-Farber Cancer Institute
In their nearly 30 years of friendship, Todd Balf and Chris McKeown have cycled thousands of miles together. From treks … Continue reading
Community fundraisers turn passion into action
As a patient-driven organization, our success depends on the initiative of supporters like you. Over the years, our amazing community … Continue reading
Together we can solve chordoma
Nearly six years ago, we heard the words that would completely change our lives: “you have chordoma.” It didn’t seem … Continue reading
Putting the “Pro” in Pro Bono: Smith, Anderson, Blount, Dorsett, Mitchell & Jernigan, LLP
Kerry Shad was already a nationally recognized employment law and litigation attorney by 2007, but off the clock, she was … Continue reading
An experimental treatment changed the life of a courageous young chordoma survivor
As the youngest child in a family of California dairy farmers, Frankie Fernandes was used to waking up early. But … Continue reading