The Chordoma Foundation works to improve the lives of those affected by chordoma - a rare and tenacious bone cancer - and is leading the search for a cure. Started in 2007 by patients and families determined to create a better future for those affected by this devastating disease, the Foundation offers a suite of services to help patients get appropriate treatment, overcome practical challenges, and get emotional support. To advance the search for a cure, the Foundation strategically initiates and funds research, facilitates communication and collaboration among researchers and drug companies, and supplies the research community with critical biological resources.
The Chordoma Foundation (CF) and The Mark Foundation for Cancer Research (MFCR) announced today a two-year, $1.4M partnership with a team of researchers at three institutions to develop new treatments for chordoma, a rare and difficult-to-treat bone cancer. The researchers will focus on creating the first drugs to inhibit a protein known as brachyury. Continue reading
We’re excited to announce that the Chordoma Foundation and the Broad Institute of Harvard and MIT recently embarked upon the most thorough effort yet to identify existing drugs with the potential to provide new treatments for chordoma patients. Continue reading
We’re delighted to share that, for the second year in a row, the National Cancer Institute (NCI) is inviting pediatric and young adult patients to participate in a chordoma-specific clinic at the National Institutes of Health (NIH) Clinical Center in Bethesda, Maryland. The clinic will take place on April 29 – May 1, 2020. Continue reading
Every day, patients and caregivers come to the Foundation looking for answers to important questions about chordoma and its treatment. … Continue reading
Chordoma caregiver and fundraiser Noreen Potempa gave an inspiring talk at our Chordoma Community Conference at Northwestern Medicine in Chicago … Continue reading
Chordoma survivor and advocate Susan Garbett gave an impassioned talk during last month’s Chordoma Community Conference at Northwestern Medicine in … Continue reading
