Unwrap progress against chordoma this holiday season
If better chordoma treatments are on your holiday wish list, this season of giving is an ideal time to host a virtual fundraiser for the Chordoma Foundation. Continue reading
Author Archives: Chordoma Foundation Team
2021 Virtual Chordoma Community Conference: Coping with anxiety, depression, and grief
During the webinar, Jennifer Bires, LCSW, OSW-C, Executive Director of Life with Cancer and Patient Experience at Inova Schar Cancer Institute, and Megan Whetstone, LCSW, an oncology social worker with the Kelsey-Seybold Cancer Center, discussed: common mental health challenges experienced by cancer survivors and co-survivors, ways to manage and cope with these challenges, what type of support is available, and how to get help for yourself or your loved one.
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New progress toward personalized treatment for chordoma
Researchers have identified two molecular subtypes of chordoma associated with different prognoses. They also found that the subtypes can be detected through blood samples, suggesting that someday chordoma diagnosis and prognosis could be determined without biopsy or surgery. Continue reading
Allen’s story: Remembering Tiffany
2021 Virtual Chordoma Community Conference: Improving balance, strength, and mobility after treatment
During this one-hour webinar, Lisa Ruppert, MD, a physiatrist and cancer rehabilitation expert at Memorial Sloan Kettering Cancer Center, and Justin Brown, MD, a reconstructive neurosurgeon at Massachusetts General Hospital’s Paralysis Center talked about the causes and symptoms of mobility issues in chordoma and how to manage them. Continue reading
Join us for an Impact Update webinar and live Q&A with Executive Director Josh Sommer
Achievements stemming from our recently completed ALL IN campaign have given us much to look forward to, and much to … Continue reading
Kaitlin’s Uncommon Story: Chordoma led me where I was meant to be
Kaitlin thought her treatment had to come before any of her own desires. But one member of her care team changed that perspective. Continue reading
What the chordoma community achieved by going ALL IN
In 2017 we launched our ALL IN campaign: an ambitious $16M initiative aiming to seize extraordinary opportunities in chordoma research … Continue reading
“There were smiles everywhere”: Honoring Noah’s memory with event to raise funds for pediatric chordoma research
Behind Noah’s incandescent smile was a painful journey: when he was just 20 months old, he was diagnosed with chordoma, an extremely rare cancer that’s even more rare among kids. Continue reading
Welcoming the unwelcome guest: Parenting with chordoma
For Mike Queensland and Kimberly Ochs, parenting with chordoma has been a lesson in letting go of control, learning to assess which challenges and opportunities they can take on, and empowering their loved ones to offer support. Though their families and experiences are different, many of their tips for navigating chordoma while parenting are the same. Continue reading