Chordoma Foundation


At the Chordoma Foundation, we are working to create better treatments, better medical care and a better experience for those affected by chordoma. Started by patients and family members, we are driven by staff, volunteers, and donors who share an urgent desire to bring about a better future for all chordoma patients. Together, our team has made progress that few thought possible and that is almost unheard of for a rare disease.

We are always looking for passionate people to join our team in both staff and volunteer capacities. Below are currently open staff positions. Additionally, if you can see yourself making an impact at the Foundation in another role, we’d love to hear from you. To explore opportunities to work with us, please contact our Executive Director, Josh Sommer at


Senior Major Gifts Officer

Thanks to recent advances in research, better treatments for chordoma are now possible within years rather than decades. How fast we get there depends primarily on funding. With no time to lose, we’re searching for someone with a passion for our story to visit our geographically-diverse community and share how they can play a critical role in bringing new treatments to patients. A passionate, entrepreneurial and growth-minded Senior Major Gifts Officer will help our community realize its full potential impact. This position provides an opportunity to work remotely on a flexible schedule and develop meaningful relationships with families across North America united in the fight against chordoma. Interested? We’d love to hear from you. Learn more and apply »


  • 100% employer-sponsored health insurance plan
  • Dental and vision insurance
  • Short and long-term disability insurance
  • Life insurance
  • SIMPLE IRA with company matching
  • Holidays and paid time off
  • Educational, training, and professional networking opportunities
  • Be a part of a passionate, talented, and hard-working team
  • A chance to make a significant impact on our organization and in the lives of patients
  • Work in the heart of North Carolina’s Research Triangle, consistently ranked one of the best places to live and work in the US

The Chordoma Foundation is proud to be an equal opportunity employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, gender, gender identity or expression, sexual orientation, national origin, genetics, disability, age, or veteran status.


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