Chordoma Foundation

About Us

Chordoma is a challenging and difficult to treat bone cancer that occurs in the head and spine in people of all ages. More effective treatments and a cure are urgently needed.

The Chordoma Foundation is a nonprofit organization working to improve the lives of chordoma patients by accelerating research to develop effective treatments for chordoma, and by helping patients to get the best care possible.

Our Approach

To accelerate the search for a cure, we initiate and fund high-impact research, facilitate information exchange and collaboration among researchers, and provide scientific resources needed to study chordoma. Learn about our research programs »

To help patients get the best care possible, we provide information about the latest treatment options, refer patients to experienced doctors, and match patients with trained peer-support mentors. Learn about our programs for patients »


Since our inception in 2007, we have united the chordoma research community, attracted numerous new researchers to the field and created the conditions needed for chordoma research to flourish. Our efforts have led to advances in chordoma research, which are being translated into improved treatments for patients. See what we have accomplished »

Our Team


Meet the Board of Directors, Scientific Advisory Board, Staff, and Volunteers behind our progress. See them here » We strive to maximize the impact of the dollars we raise by operating efficiently and keeping expenses low. See how our budget is allocated »


Corporate Partners

We are deeply grateful to the individuals, businesses and foundations whose generosity makes our work possible. See ways you can contribute to our success » These companies provide invaluable pro bono services to the Foundation, enabling us to spend more of our budget directly on advancing chordoma research. See them here »

CF In the News

Latest Updates

Our work has been featured in national news outlets including Newsweek, Forbes, AP, the TODAY Show, and ABC World News. See the stories » Read about recent milestones, new initiatives and important announcements. See what’s new »