Chordoma Foundation

Champion Profiles

In the fight against chordoma, everyone affected by chordoma has a role to play. The power of the Chordoma Foundation comes from patients, friends and family members working together and pooling resources to achieve our shared mission. Below are stories about champions within our community whose efforts have made a significant impact and inspired others.

Jeff Schilling Profile Picture

Jeff Schilling: You Can’t Let a Disease
Run Your Life

Hans Keulen

Hans Keulen: European Liaison Expands
Foundation’s Reach Internationally

Chris Kuhn and Family

Chris Kuhn: Survivor Teams with Fellow Cyclists to Raise Funds for Foundation

Aster Event Organizers

Laird Family: Annual Concert, Auction Raise Funds in Memory of Remarkable Woman

Joe Nemelka Fundraiser

Vance and Nemelka Families: Raising Funds in Memory of their Children to Advance Chordoma Research

Susanna Johnson Swimming

Sue Johnson: Swimming for a Cure