Turn your passion into action
Raise funds to help fight chordoma, a one-in-a million bone cancer
From the beginning, the Chordoma Foundation’s story has been one of patients and families coming together to accomplish the improbable. Among our most inspiring supporters are Chordoma Champions: individuals who rally their personal network to fundraise for the Foundation. Champions speed the path to better treatments, better care, and better experiences for everyone affected by chordoma.
Here’s how to join our growing community of Champions
Create a Champions page. Customize your online fundraising page to share your chordoma story, honor a survivor, or establish a memorial for a loved one.
Once you create a Champions page, you can create a connected Facebook fundraiser to seamlessly and simultaneously fundraise on Facebook to boost your reach, and your fundraising progress will stay in sync on both your Champions page and Facebook. Or, if you prefer, you can set up a Facebook fundraiser instead of a Champions page.
Be the first to make a donation. Set the example for your friends and family and get the ball rolling toward your fundraising goal.
Ask your friends and family to make a donation by sharing your online fundraising page through social media, emails, and texts.
See the resources and samples below to help you get started. We’ve prepared templates, drafted video scripts, and gathered resources about chordoma to support your fundraising efforts.
If you want even more support, we’d love to give you a one-on-one virtual fundraising consultation: contact email@example.com.
When I started to tell my story, people came out of the woodwork – family, friends, elementary school classmates, former teachers, people in the town where I grew up. It was incredible. So many people wanted to help.
Maureen first started her Champion page back in 2012 to share her story and give her friends and family an opportunity to rally around her. She has raised over $90,000 and counting!
It was amazing to have Team Chordoma and our fundraising effort grow once again. What has been so meaningful is the increasing involvement of the broader Chordoma Foundation community in making this event such a success. I look forward to engaging even more community volunteers and runners next year.
As captain of #TeamChordoma, Steve has led his team of runners in the Miami and Brooklyn Half Marathons since 2014, raising more than $350,000!
Make an impact
We have reached a critical turning point for chordoma at which science is starting to outpace the progression of an individual’s disease. The stage is set for new treatments and cures to be available in our lifetime, but we need your help to get there. Your fundraising efforts – no matter the size – can have a great impact on chordoma research and care.
Here are some examples:
Provides one chordoma patient or family with personalized support from our Patient Navigators.
Sequences the genome of a chordoma tumor to uncover the genetic alterations that drive the disease.
Supports cell line distribution to 20 labs across the world, enabling research that would otherwise not be possible.
In the nearly 15 years since the Chordoma Foundation was launched, we have fueled progress that is virtually unprecedented for a rare cancer, fundamentally transforming this once-neglected disease into a solvable problem. But patients still face an urgent need for cures and your help can get us there.
We have the research framework and scientific knowledge needed to develop a cure in our lifetime. All we need now are the resources to make it happen.
Not sure where to begin? We’ve created several templates and materials that can help you get started. Feel free to use any of the materials below or call us for help if you don’t see what you need.
Personalize our email template to send to your friends and family and request their support.
Consider recording a video to share your own experiences with chordoma to share on your online fundraising page, in your emails, and on social media. Check out the sample script below.
Sample video script
When you hear the words “you have cancer” [or “your child has cancer” or “your loved one has cancer”] your life changes forever. That’s the moment when the race begins — a race to find answers, treatments, and hope. And when that cancer is as rare as chordoma, a one-in-a-million tumor that grows in the bones of the skull and spine, the race can feel even tougher. That’s where our family [or our friend’s family] is now. In a race against time to find a cure for ____________ [insert name], and ensure that he/she is able to live fully and comfortably along the way.
Our coach and partner in this race is the Chordoma Foundation. This small but powerful nonprofit is leading the search for better treatments, better care, and a better experience for ____________ [insert name] and for everyone affected by chordoma. The Foundation has made tremendous progress in the past decade studying experimental drugs, helping patients find experienced doctors and relevant clinical trials, and focusing top cancer researchers on this rare tumor. [For our family, that has meant ___________ (add personal anecdote).] But the Foundation relies on people like us — people touched by this disease — to help them keep the momentum going. We’re incredibly proud to support the Chordoma Foundation and hope you will join us in making a donation of $XX, or whatever you can give. Chordoma is a solvable problem, and with adequate support, we can solve it together. Thank you!
You may also choose to use one of the following videos produced by the Chordoma Foundation.
Use these handouts produced by the Chordoma Foundation to help your friends and family learn more about chordoma and the impact their donations can have.
- Two-pager about the Chordoma Foundation (PDF)
- Booklet about the Chordoma Foundation (PDF)
- Informational flyer describing chordoma and the programs and educational materials the Chordoma Foundation has available (PDF)
- Chordoma fact-sheet for non-chordoma health care providers (PDF)
Sample social media posts
Ask your friends and family to make a donation by sharing your online fundraising page, video, and resources about chordoma through social media. The following are sample post ideas for Facebook and Twitter.
Sample Facebook post #1
When you hear the words “you have cancer” [or “your child has cancer” or “your loved one has cancer”] your life changes forever. That’s the moment when the race begins — a race to find answers, treatments, and hope. And when that cancer is as rare as chordoma, a one-in-a-million tumor that grows in the bones of the skull and spine, the race can feel even tougher. That’s where our family [or our friend’s family] is now. In a race against time to find a cure for ____________, and ensure that he/she is able to live fully and comfortably along the way. Our partner in this race is the Chordoma Foundation, a small but powerful nonprofit that is working to improve the lives of everyone affected and lead the search for a cure. They rely on donations from people like us — people touched by chordoma — to help them keep up the rapid pace of progress in chordoma science and care going. So I’m asking today if you will join me in making a gift of $XX, or whatever you can, to the Chordoma Foundation in _____________’s name. Together, we can make a difference.
Sample Facebook post #2
Cancer stinks. Whether it’s a type of cancer that affects millions or, in the case of chordoma, a rare cancer that affects one in a million, it upends lives and changes futures. For me/our family, ____________________ [insert personal anecdote]. But while dealing with chordoma can feel lonely, we know we’re not alone. We have our family, our friends, and the Chordoma Foundation, a small but powerful nonprofit that has transformed chordoma from a rare cancer about which virtually nothing was known to a disease with several promising treatment options in clinical trials and a growing community of scientists, doctors, and patients working together to improve lives and find a cure. Join us in supporting their work and bringing hope and help to others affected by making a gift today.
Sample tweet #1
Are donations tax-deductible?
The Chordoma Foundation is a 501(c)(3) non-profit organization, EIN# 20-8423943. Donations are tax-deductible to the full extent allowed by law. Please consult your tax advisor about the deductibility of your donation.
How are donations used?
Donations are used to improve the lives of those affected by chordoma and lead the search for cures. The Chordoma Foundation invests in three mutually reinforcing program areas: Research, Patient Services, and Healthcare Improvement. While working to develop better treatments for tomorrow, we are creating a better experience for those living with chordoma today.
I’m nervous about asking friends and family to donate! Won’t it be awkward?
It’s normal to feel nervous as a first-time fundraiser, but our Champions tell us time and time again how rewarding it is to share their passion and story with loved ones, and give them an opportunity to help with this cause. You have the power to make an extraordinary difference in the fight against chordoma, and every dollar you raise brings us closer to the day when everyone affected by chordoma is able to overcome the disease and maintain their quality of life.
What if I want to fundraise with a team?
Great idea! Contact firstname.lastname@example.org and we’ll help you get it set up.
Can my fundraiser be a real-life event instead of virtual?
Absolutely. Our Fundraising Event page has tools and ideas for hosting an in-person fundraiser.
Who should I contact with questions?
Contact email@example.com with questions about fundraising.
About the Chordoma Foundation
The Chordoma Foundation is a 501(c)(3) nonprofit organization that serves the needs of the worldwide chordoma community, and partners with healthcare providers, scientists, and companies to improve the lives of those affected by chordoma and lead the search for a cure. The Foundation envisions a future in which everyone affected by chordoma is able to overcome the disease and maintain their quality of life. To achieve this vision, it invests in three core goals: better treatments, better care, and a better experience for everyone touched by chordoma. Since 2007, the Foundation has served thousands of chordoma patients around the world and dramatically accelerated the search for new therapies.