Explore answers to frequently asked questions about the Chordoma Community Conferences and email firstname.lastname@example.org for more information.
In 2015, we began hosting regional Chordoma Community Conferences in partnership with leading medical centers in the U.S. and Europe. The regional conferences aim to bring the latest updates in chordoma science and care to patients and caregivers in their own communities, connecting them with one another and with the experts serving their region. While all are welcome to attend, most regional conference participants either live in the immediate vicinity, or receive treatment from the hosting medical center. As such, experts from the hosting institutions are prominently featured on the agenda at these gatherings.
A highlight of the ICCCs is a reception and dinner where the patient community can interact with the doctors and researchers working on better treatments for chordoma. ICCC participants have unique opportunities to learn from members of the Foundation’s Medical and Scientific Advisory Boards and to ask them questions about the latest treatment options and research. Topics covered at ICCCs typically include recent research advances, current treatment recommendations, clinical trials, survivorship care, and quality of life.
Our next ICCC will be held in 2020.
You may also find it helpful to read the glossary of medical terms in the back of the Expert Recommendations booklets, as the medical vocabulary can be difficult to understand. Being familiar with terms helps make the expert talks more understandable.
One of our Patient Navigators will be happy to answer any questions you have about the conference. Just send an email to email@example.com.
Click here to download a list of all hotels that offer discounted rates to Northwestern Medicine patients and families.
Please see the travel page of our website for more detailed information about lodging.