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Read about new advances in chordoma research, educational resources, ways to take action, and opportunities to connect with others. To get future updates delivered to your inbox, sign up for our newsletter. You can also view the latest publications that have resulted from our work.

Taking action

Navigating a rare cancer diagnosis: Insights from new book, “Fatal to Fearless”


Kathy Giusti's book is a roadmap for navigating a cancer diagnosis and its aftermath. It's also a testament to the power of learning, support, and action — a framework that many people in the chordoma community also embrace and exemplify.

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