Chordoma Foundation

Patient Navigation Service

The Chordoma Foundation serves as a resource for chordoma patients and families around the world, at any stage of their journey with chordoma. Our free and confidential Patient Navigation Service helps individuals facing chordoma overcome barriers to getting the best care possible – whether it’s finding the right doctors, understanding treatment options, or getting emotional support, Chordoma Foundation Patient Navigators are here to assist you.

Our Patient Navigators can:

  • Answer questions about chordoma
  • Provide information on treatment guidelines, experienced physicians, and treatment centers
  • Identify and provide information on clinical trials open to chordoma patients
  • Give referrals to programs and organizations that offer travel and lodging assistance, co-pay relief, and other benefits
  • Support requests and appeals to insurance companies
  • Connect chordoma patients and caregivers with others in the chordoma community

Request help from a Patient Navigator

Our Patient Navigators are available by email and phone, Monday through Friday from 8 AM to 5 PM EST. You can contact a Patient Navigator by completing the form below or by calling (888) 502-6109.  A Patient Navigator will be in touch with you within 1–2 business days.

Our Patient Navigators are native English speakers but can provide written support in other languages using Google Translate.


Terms of Service
By checking the box below and submitting this form, you consent to be contacted by a Patient Navigator from the Chordoma Foundation. 

After you click on the submit button below, your information will be sent to a Chordoma Foundation Patient Navigator. The Patient Navigator will contact you within 12 business days to talk with you about information and resources that can help meet the needs indicated in this form. 

The Chordoma Foundation values your privacy and will not sell or share your information with any other organizations.

Click Submit, below, when you have completed the form above. Chordoma Foundation Patient Navigators are available to assist you Monday-Friday from 8AM-5PM ET and will respond to your request within 1-2 business days.

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