Join our peer support program
Chordoma Foundation Peer Connect
Support from someone who has been there can make all the difference. Peer Connect is a free, confidential peer-to-peer support program that connects anyone touched by chordoma with another person whose experiences with chordoma are similar. Trained Peer Guides are available to support patients who are newly diagnosed, patients in active treatment, survivors, caregivers, family members, or friends.
Get matched with a Peer Guide
If you’re interested in talking to someone who has been through a similar chordoma journey, Peer Connect can help. Once registered, we will match you with a trained guide who has had a similar cancer experience and who has had to face many of the same challenges that you now face. All guides are trained to provide a listening ear, serve as a sounding board, and, if requested, suggest helpful information and resources.* The connection between you and your assigned guide may involve only a few phone calls, or it may develop into a longer relationship, whatever is most helpful for you.
Benefits of the Peer Connect program
- Feel connected with others who understand your thoughts and feelings
- Establish trusting relationships
- Explore cancer resources
- Gain coping and communication skills that can be helpful during cancer and in everyday life
- Be heard and supported
*Guides do not serve as health professionals and can not provide medical advice. By participating in the Chordoma Foundation Peer Connect program, you acknowledge that you understand the program is for support purposes only and does not provide medical, legal, or psychological advice, diagnosis, or treatment. The Peer Connect program may provide helpful health-related information, but it is not intended to substitute for professional advice, diagnosis, or treatment.
Become a Peer Guide
Has your life been touched by chordoma? Do you remember benefiting from talking with someone who had already been through the chordoma journey? Do you understand the questions and fears someone might experience because of your own experiences with chordoma?
If you answered yes to any of these questions, then you may be uniquely qualified to give back to the chordoma community by becoming a Peer Guide. You will be trained using an evidence-based approach that will provide you with active listening tools and skills for providing support. Learn more about the Peer Guide experience.
Criteria for becoming a Peer Guide
- Be at least one year past active treatment or one year past providing caregiving during your patient’s active treatment
- Have strong interpersonal skills
- Be emotionally ready to participate in a supportive relationship
- Be willing to commit to an active match for at least six months
Connect with peers on Facebook
Chordoma Support and Survivors Group on Facebook
Newly diagnosed patients, chordoma survivors, and family members can connect with others in the chordoma community through a private Facebook group moderated by two seasoned chordoma survivors. This close-knit community exists to help answer questions, share personal experiences, offer guidance, and serve as encouragement throughout your journey with chordoma. There are over 2,400 members in 83 countries in this private/closed forum and when you join you’ll be asked to answer a few simple questions that only group moderators can see. Because this is a private/closed group, posts within the group are visible only to group members.
*While many members of this Facebook group are involved with the Foundation as volunteers and community advisors, the group is privately run and separate from the Foundation.