Chordoma Foundation

2016 International Community Conference

July 16, 2016  |  Boston Marriott Cambridge Hotel



Conference materials

Speaker presentations

Welcome and announcements
Heather Lee ~ Community Advisory Board Chair and
Shannon Lozinsky ~ Chordoma Foundation
View slides
Leading the search for a cure: Chordoma Foundation research updates
Josh Sommer ~ Chordoma Foundation
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Latest advances in chordoma research
Adrienne Flanagan, PhD ~ University College London
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Featured chordoma research team: Broad Institute
Tanaz Sharifnia, PhD ~ Broad Institute
The promise of immune therapy for chordoma
Chris Heery, MD ~ National Cancer Institute
View slides
Drug therapy for chordoma: The role of clinical trials and personalized medicine
Greg Cote, MD, PhD ~ Massachusetts General Hospital
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Building a global consensus: History of the chordoma consensus group
Silvia Stacchiotti, MD ~ Istituto Nazionale dei Tumori
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Ask the experts panel
Moderator: Ed Les, MD
Greg Cote, MD, PhD ~ Massachusetts General Hospital Thomas DeLaney, MD ~ Massachusetts General Hospital
Paul Gardner, MD ~ University of Pittsburgh Medical Center Chris Heery, MD ~ National Cancer Institute
Francis Hornicek, MD ~ Massachusetts General Hospital Silvia Stacchiotti, MD ~ Istituto Nazionale dei Tumori
Life with chordoma: Ensuring quality of life
The importance of palliative care
April Zehm, MD ~ Massachusetts General Hospital
View slides
Rehabilitation and chordoma care
Jayne Donovan, MD ~ Massachusetts General Hospital
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Navigating your medical care
Al Ferreira, RN ~ Massachusetts General Hospital
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Bill Dorland ~ Chordoma community member
Andy Schoelkopf ~ Chair, Chordoma Foundation Board of Directors

Organizing committee

  • Sharon Berlan
  • Nadine Cordova
  • Brittany Fuchs
  • Susan Garbett
  • Norma Jones
  • Heather Lee
  • Adriane Rothstein


 We are grateful for the generosity of the following conference sponsors:
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