Chordoma Foundation

2021 Virtual Chordoma Community Conference Series

We are excited to host a Virtual Chordoma Community Conference (CCC) Series featuring webinars about some of the most common quality of life challenges you face. 

Based on our ongoing Chordoma Survivorship Survey’s initial findings, each webinar will focus on a physical, emotional, or practical challenge that commonly affects patients, caregivers, survivors, and co-survivors. These free, live, one-hour webinars will feature expert clinicians and specialists who specialize in the challenge at hand and can help you understand the issues, learn what treatments are available, and find out how to access them.

As part of the 2021 Virtual CCC Series, we will again host a 90-minute “Ask the Experts” webinar offering real-time answers to any questions you may have about your chordoma journey. At our in-person Chordoma Community Conferences, the Ask the Experts Q&A panel is always one of the most valuable and well-attended sessions, and last year’s webinar proved to be the same.


2021 Virtual CCC Series


Dealing with cancer-related fatigue


Ask the Experts


Improving balance and mobility


Coping with anxiety, depression, and grief

Options for comprehensive pain management

April 2021


Responses to our ongoing Chordoma Survivorship Survey show that, depending on tumor location, as many as 57 percent of chordoma patients and survivors experience chronic pain. But you don’t have to accept pain as a normal part of having chordoma. Watch this 60-minute webinar featuring Maryam Jowza, MD, Staci Martin Peron, PhD, and Sasha Knowlton, MD, to learn more about the type of pain you might be experiencing, where to get help dealing with it, and how the Chordoma Foundation can support you.



Please accept marketing-cookies to watch the video.


Watch webinar on YouTube »


Featured speakers

Maryam Jowza, MD

Assistant Professor
Department of Anesthesiology
Division of Pain Medicine
University of North Carolina Health

Sasha Knowlton, MD

Sasha Knowlton, MD

Assistant Director of Cancer Rehabilitation
Department of Physical Medicine and Rehabilitation
Spaulding Rehabilitation Network and Harvard Medical School

Staci Martin Peron, PhD

Staci Martin Peron, PhD

Clinical and Training Director
Health Psychology and Neurobehavioral Research Program
Pediatric Oncology Branch
National Cancer Institute

Information provided by the panelists is not be patient-specific and is not medical advice. Please follow up with your doctor to discuss the information you learn from this webinar.

Stay tuned for details about other webinars in the 2021 Virtual CCC Series!

You can subscribe to our emails and we will also update this page.

Webinar icon

Webinar Library

In addition to the 2021 Virtual Chordoma Community Conference Series, the Chordoma Foundation periodically hosts free live webinars featuring researchers, clinicians, specialists, and patients to help you learn about various aspects of chordoma. Recordings are available in our Webinar Library

Pin It on Pinterest

Share This
Comodo SSL