Chordoma Foundation


Below is the schedule from the 2019 Chordoma Community Conference at Northwestern Medicine. Click here for a PDF of the agenda.

Location: Shirley Ryan AbilityLab 355 East Erie St, Chicago, IL 60611

Please note the times listed are in Central Time. 




7:45 AM Registration and breakfast
8:30 AM Welcome and announcements  Josh Sommer – Chordoma Foundation

Maciej Lesniak, MD 

Jean-Paul Wolinsky, MD

9:00 AM State of the art treatment
Skull base surgery

Spine surgery


Stereotactic radiosurgery

Medical oncology

James Chandler, MD 

Jean-Paul Wolinsky, MD

Vinai Gondi, MD 

Sean Sachdev, MD 

Roger Stupp, MD 

Deric Park, MD – University of Chicago

10:30 AM Break
11:00 AM Ask the Experts panel James Chandler, MD 

Jean-Paul Wolinsky, MD

Vinai Gondi, MD

Sean Sachdev, MD

Deric Park, MD – University of Chicago

12:30 PM Lunch
1:30 PM Advancing the search for a cure Josh Sommer – Chordoma Foundation
2:00 PM Break
2:30 PM Living with chordoma (breakout sessions)
Skull base and cervical spine Kristen Forand, MA, CCC-SLP
Amy Pietro, OTD, OTR/L
Misty Kirby-Nolan, APN-CNP
Thoracic, lumbar, and sacral Stephanie Kielb, MD
Amanda Ellis, PT
Misty Kirby-Nolan, APN-CNP
4:00 PM Patient perspective Susan Garbett – Sacral chordoma survivor
4:20 PM Future horizons
Tissue banking and sequencing

Recent advances in chordoma research


Josh Sommer – Chordoma Foundation

Kathleen McCortney

Deric Park, MD – University of Chicago

5:15 PM Closing  Noreen Potempa – Chordoma caregiver and community fundraiser

Josh Sommer – Chordoma Foundation

Jean-Paul Wolinsky, MD

5:30 PM Reception

A reception was held in the lobby immediately following the conference sessions.

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