Chordoma Foundation

Now available for download: New “About Us” booklet

As we continue to celebrate the Foundation’s tenth anniversary this year, we’ve been reflecting on our evolution as an organization and thinking ahead to the extraordinary opportunities before us.

Thanks to your involvement and support, we are a community making uncommon progress at an uncommon pace.

With a growing number of promising new therapies reaching human clinical trials and a strong pipeline of preclinical drug candidates moving toward the clinic, better treatments for chordoma are no longer decades away, they are now possible within years.

But to achieve the future we all seek – a future in which everyone affected by chordoma is able to overcome the disease and maintain their quality of life – we must continue to tell our story and engage others who can help to get us there.

That’s why we’re delighted to share our new “About Us” booklet, which is designed to introduce those individuals to the Foundation, share our uncommon approach to accelerating research and improving lives, and highlight the scientific achievements and opportunities that set chordoma apart from other rare diseases.

You’ve told us in the past that it would be helpful have something tangible to share with family or friends – at community events or gatherings – that explains just how unique our disease and our progress truly are, and we created this booklet with your requests in mind.

We encourage you to download the booklet and share it broadly. You can also request hard copies, which the Foundation will mail to you directly.

Thank you to the amazing community members who allowed us to share their photos, quotes, and stories in this piece, and thanks to YOU for helping to spread the word and engage new partners in the fight against chordoma.

Chordoma is a solvable problem. It’s not a matter of if, but when. The key variable is who joins with us to be part of the solution.

Download About Us booklet »

Request hard copies of About Us booklet »