The University of Pittsburgh and Dignity Health’s Barrow Neurological Institute at St. Joseph’s Hospital and Medical Center are the latest institutions to partner with the Chordoma Foundation Biobank. They join two initial partner sites – the University of California at San Francisco and the University of North Carolina at Chapel Hill – to routinely bank and share high-quality chordoma tumor tissue needed for research.
The addition of these new partner sites will significantly accelerate the expansion of the Biobank’s collection and will enable the Foundation to begin distributing samples sooner in 2013. Partnering with the Chordoma Foundation in this way signifies a strong commitment to advancing chordoma research and improving the treatment of chordoma patients. The Foundation is deeply grateful to the physicians, staff, and administration at each of these hospitals for contributing to this important collaborative effort.
Chordoma patients who have surgery at these hospitals will be given the option to donate part of their tumor – only what is not needed for clinical care – to be used for research. If a patient consents, a portion of their tumor will be saved locally, and a portion will be shipped to the Foundation’s centralized Biobank to serve as a resource to the entire chordoma research community.
While these four partner sites have agreed to routinely collect tissue on behalf of the Foundation, patients can request to donate tissue to the Biobank regardless of where they have surgery (in the United States) by contacting the Biobank at (877) 230-0164 or firstname.lastname@example.org.
Since the Biobank was launched in April, 28 patients treated at over a dozen hospitals have contributed tissue. The Chordoma Foundation is currently working to set up partnerships with additional hospitals across the US. To learn more about the biobank and current partner sites, click here.