Chordoma survivor and advocate, Michael Torrey is riding in Vermont to raise awareness about chordoma during Sarcoma Awareness Week. Way to go Mike! Read his message below:
I believe change starts with each and every one of us! In August of 04, I was diagnosed with a Clival Chordoma. Navigating my emotions, thoughts and responsibilities was more than enough work without the challenges of sifting through varying medical opinions, something I vowed to help change. Even with good insurance, there is no guarantee that we will be properly informed or treated. After multiple surgeries and radiation treatment, I am resolute in knowing that healthcare must and can be improved upon.
This summer from July 14 – 22, we will join an effort to create an International Sarcoma Awareness Week. This is long-distance run/walk/bike tour by dozens of survivors, patients, caregivers, and friends and family members affected by sarcomas. Chordomas are just one of over 50 different subtypes of sarcomas. There are more than 45 teams planning events in 14 countries, backed by 13 sarcoma centers or programs and 15 sarcoma advocacy groups.
You can help by creating your own walk/run/bike right where you live wearing wristbands from The Liddy Shriver Initiative who is spearheading this event. I believe that the Chordoma Foundation and The Liddy Shriver Initiative are a stand for all rare diseases and the improvement of healthcare as we dare to believe in change, and turn belief into action and action into results.
Please join us.