Chordoma Foundation

Expert Answers Webinar recording now available on YouTube

Making a decision about clinical trial participation

On Thursday, June 7, the Chordoma Foundation hosted our first Expert Answers Webinar. It featured leading medical oncologists and clinical trial experts Dr. Greg Cote of Massachusetts General Hospital and Dr. Katherine Thornton of Dana Farber Cancer Institute answering commonly asked questions about considering and participating in clinical trials.

Designed as a complement to our Expert Answers Series of videos, the webinar is part of the Foundation’s continued effort to improve the lives of those affected by chordoma through education and support. The full, one-hour webinar recording is now live and available on our YouTube channel.

 

Topics include:

  • Understanding the purpose of clinical trials and addressing common misconceptions. Thornton discusses the differences in the 4 phases of clinical trials and why each is done, as well as common fears and concerns patients have about participating.
  • What to expect from trial enrollment and participation. Once an individual decides to join a clinical trial, there are several steps in the enrollment process. Dr. Cote describes them in detail – from eligibility screening to patient consent – and gives examples of clinic visit and checkup schedules to help patients and caregivers be their own best advocates.
  • Answers to questions submitted by members of the chordoma community. During the second half of the webinar, Drs. Thornton and Cote field more than twenty community member questions that range from the appropriate timing for a clinical trial to the risks and benefits of enrolling in one to what types of results are typically made public.

 

For more information on clinical trials for chordoma patients:

  • Check out the Clinical Trials Catalogue on our website which lists all chordoma-specific trials, as well as all other trials deemed relevant to chordoma patients by our Medical Advisory Board (MAB). The Catalogue currently includes information on 17 trials worldwide.
  • Contact a Chordoma Foundation Patient Navigator.