Chordoma Foundation

Community events turn passion into fundraisers

As a patient-driven organization, our success depends on the initiative of supporters like you. Over the years, the Foundation has been fortunate to benefit from dozens of amazing community members who’ve turned their wide array of interests and passions into fundraising events that help accelerate the development of new treatments, and provide vital support services to chordoma patients and families.

This fall, there are a number of exciting and diverse events around the world that you can participate in or support! From concerts to pub crawls, dinners to marathons, and bowling to climbing, our dedicated community fundraisers continue to prove that there is no mountain high enough (literally!) to keep us from advancing progress toward cures, and having fun while doing it.

Thank you to the incredible individuals who have volunteered their time and resources to make these events possible, and to all our fundraisers for everything you do for the Foundation and the chordoma community.

We would not be where we are without you.

Check out the events happening this fall and consider attending or supporting them.

Climb for Chordoma – September 9

Chordoma survivor and CF Community Advisory Board member, Ed Les will climb Centennial Ridge in Alberta, Canada, the highest maintained trail in the Canadian Rockies with more than forty others, during this inaugural event. As they climb to the summit, you can help them reach their goal by making a donation today!

Cardiff Half Marathon – October 1

The Barker-Wright family and a team of more than 60 runners are taking on the Cardiff Half Marathon around Wales’ capital city in remembrance of their son Drew. This is the first of many events that will be held in memory of Drew to fund pediatric chordoma research and support families affected by pediatric chordoma.

Blockbuster Bowling Benefit – October 7

Chordoma survivor and CF Community Advisory Board member, Jeff Schilling is holding his 10th annual bowling event in Kansas City, Missouri at Ward Parway Lanes. If you are in the area, grab some friends and sign up for a great time because tickets are going fast!


Riccomini Pub Crawl – October 14

The Riccomini family is hosting their annual pub crawl and fundraiser in remembrance of their son Cameron in West Sayville, Long Island. They will be visiting six bars through the course of the evening to support the work of the Foundation. Stay tuned for more details!

One in a Million Benefit – November 8

Chordoma survivor Mick Potempa and his wife Noreen are hosting their third One in a Million benefit dinner at Café Lucci in Glenville, Illinois. This year’s event will be attended by Chordoma Foundation Executive Director, Josh Sommer, and promises to be a one in a million evening. Food and drink will be included in the ticket price. Stay tuned for more details!

Chords for Chordoma – November 9

Join chordoma survivor Steven Golick, in Toronto, Canada for a very special jazz concert benefiting chordoma research. Steven is hosting Chords for Chordoma to give back to the medical professionals who deal with chordoma and the patients and their families affected by it. The concert will be a rare opportunity to hear many of North America’s jazz masters on a single stage.

If you are interested in fundraising on behalf of the Foundation, please contact We would love to talk with you and help you create your own community event!

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