Chordoma Foundation

Chordoma Foundation represented at Genetic Alliance Week of the Advocate

Josh and Simone represented the Chordoma Foundation at the Genetic Alliance Gala, Genetics Day on the Hill, and the Genetic Alliance Annual Conference in Bethesda from July 25-29.

These events brought together hundreds of researchers, patient advocates, and policy makers, providing a great context for networking, learning and brainstorming. The conference featured intensive training for conducting scientific research and provided strategies for building an efficient and effective organization. The greatest learning experience came from talking with experienced advocates who were eager to share their wisdom and offered guidance for the Chordoma Foundation. We came away with renewed vigor and a solidified plan for building and expanding the Chordoma Foundation.

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