Chordoma Foundation

2008 International Community Conference

April 5-6, 2008  |  Bethesda, MD


2008 CCC

Speaker Presentations


The Parent’s Ultimate Challenge – When Kids/Teens Have Chordoma
Julie Ries, PhD, Pediatric Clinical Psychologist at Lifebridge Health’s Brain and Spine Institute
Navigating the Insurance Maze in the US – Where do I begin?
Jennifer Libster, JD, Georgetown University Health Policy Institute
Advice and Care for Caregivers
Brigid Guttmacher, MA, LPC
What are my rights? – Understanding laws that protect the patient and caregiver
Kerry A. Shad, JD, Partner, Smith, Anderson, Blount, Dorsett, Mitchell & Jernigan, LLP
Alternative Coping:  Negotiating the Biological and Psychological Dimensions of Pain
Melva Green, MD, MBA, MPH, Johns Hopkins Department of Psychiatry and Behavioral Sciences
Navigating The Healthcare System
Delia Chiaramonte, MD, President, Insight Medical Consultants

Ask the Experts Panel


Fran Hornicek, MD, PhD – Massachusetts General Hospital [Orthopaedic Surgery] Michael Kelley, MD – Duke University [Hematology and Oncology]
Norbert Liebsch, MD, PhD – Massachusetts General Hospital [Radiation Oncology] Frank Lieberman, MD – University of Pittsburgh[ Neuro-Oncology]
Dilys Parry, PhD – National Cancer Institute [Genetics, Familial Chordoma Study] Lilia Loredo, MD – Loma Linda Medical Center [Radiation Oncology]
Deric Park, MD – University of Pittsburgh [Neurology & Neuro-Oncology] Jean Paul Wolinsky, MD – Johns Hopkins University [Neurosurgery]

Coordinating Committee


  • Sharon Berlan
  • Margie Carberry
  • Bill Dorland
  • Melissa Dorr
  • Norma Jones
  • Heather Lee (chair)
  • Ed Les
  • Bruce Nelson
  • Lynette Nelson
  • Marti Neugarten
  • Candice Owen
  • Adriane Rothstein
  • Carolyn Rubenstein (youth chair)
  • Josh Sommer
  • Simone Sommer
  • Michael Torrey

Volunteers


  • Ben Abram
  • Whitney Ahneman
  • Abby Becherer
  • Stephen Dean
  • Amber Johnson
  • Keith Johnson
  • Kara Leibel
  • Ben Kanoy
  • Marysia Marts
  • Alex Oden
  • Candice Owen
  • Ronda Peoples
  • Devon Schwartz
  • Caleb Scoville
  • Erin Seo
  • Elise Stoll