Chordoma Foundation

Category Archives: Uncommon Stories

Uncommon stories

You don’t have to face chordoma alone. Our welcoming and supportive community of patients and their loved ones have shared what they’ve learned throughout their journeys so that you can know what you might expect throughout your own. Below you will find the Uncommon Stories of people who are determined not to let chordoma define them. 

You can give hope to others in the chordoma community by sharing the story of your own journey. Joined together in our Uncommon Cause, we can find the hope and strength to continue our search for a cure. 

Share your Uncommon Story »


Susie Rinehart’s Fierce Joy

Susie Rinehart has always been strong. She’s a mom, a leadership coach, an international girls’ empowerment advocate, and an ultrarunner. But beneath the veneer of confidence and success, she struggled with anxiety and depression, feelings she neither shared nor confronted until a diagnosis of chordoma forced her to reconsider what mattered most. Continue reading



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