Going ALL IN – The Mainey’s Story
Before Chuck Mainey was diagnosed with chordoma in 1999, he and his family — like many affected — had never heard of it. … Continue reading
Category Archives: Latest Updates
Chordoma community invited to participate in the Natural History Study of Rare Solid Tumors
The ongoing challenges presented by the COVID-19 pandemic have interrupted and altered medical research across the globe. While some scientists have had to halt their studies abruptly, others can forge ahead thanks to virtual options. The chordoma community is one of many rare disease communities invited to participate in one such study, the Natural History Study of Rare Solid Tumors, currently underway at the National Cancer Institute (NCI). Continue reading
Coronavirus: Special considerations for chordoma patients
As we all contemplate how the novel coronavirus (COVID-19) might affect our lives and our communities, I want to take … Continue reading
The Chordoma Foundation and The Mark Foundation for Cancer Research fund open-source research to accelerate drug discovery following recent breakthroughs
The Chordoma Foundation (CF) and The Mark Foundation for Cancer Research (MFCR) announced today a two-year, $1.4M partnership with a team of researchers at three institutions to develop new treatments for chordoma, a rare and difficult-to-treat bone cancer. The researchers will focus on creating the first drugs to inhibit a protein known as brachyury. Continue reading
Comprehensive drug screening effort offers the best chance of finding new treatments for chordoma in the near-term
We’re excited to announce that the Chordoma Foundation and the Broad Institute of Harvard and MIT recently embarked upon the most thorough effort yet to identify existing drugs with the potential to provide new treatments for chordoma patients. Continue reading
National Cancer Institute to host second annual pediatric and young adult chordoma clinic
We’re delighted to share that, for the second year in a row, the National Cancer Institute (NCI) is inviting pediatric and young adult patients to participate in a chordoma-specific clinic at the National Institutes of Health (NIH) Clinical Center in Bethesda, Maryland. The clinic will take place on April 29 – May 1, 2020. Continue reading
A time of great momentum
The year has started off with a feeling of great momentum at the Chordoma Foundation thanks to an outpouring of support for our recently-launched ALL IN campaign – including more than $3M in just the last few months. Continue reading
Go ALL IN with us!
Over the past dozen years, this community has transformed chordoma from a completely neglected disease into one for which extraordinary … Continue reading
Frequently asked questions answered in four new Expert Answers Videos
Every day, patients and caregivers come to the Foundation looking for answers to important questions about chordoma and its treatment. … Continue reading
Welcoming new board and committee members
We’re excited to announce some fantastic new additions to both our Board of Directors and our Board’s Patient Services Committee. … Continue reading