We recently held our biennial International Chordoma Research Workshop (ICRW) — shifted online this year due to the pandemic — where there were some meaningful advances discussed and I wanted to take a moment to share highlights and key takeaways. Continue reading
We are pleased to announce that the Chordoma Foundation and the Cancer Research Institute (CRI) have together awarded a $200,000 grant to a team of researchers at The University of Texas MD Anderson Cancer Center with the goal of creating the first cell based therapy for chordoma. Continue reading
Todd Balf doesn’t think of himself as a survivor. He is, by his own description, a “quote-unquote regular guy” who has been through an extraordinary set of circumstances. You can read Todd’s story in his new book, Complications published in July as part of a new Scribd Original series of audio and ebooks. Continue reading
During our recent Ask the Experts webinar, we were joined by a panel of chordoma experts who provided helpful and informative answers to questions from chordoma patients and their loved ones. We think you’ll find the information shared in the Ask the Experts webinar is a great resource. Continue reading
The survey is now closed. View preliminary results from the survey. Last month, we launched the Chordoma … Continue reading
Join us in going ALL IN for chordoma by making a gift of whatever you can contribute in these challenging times. Joel and Shari Beckman have gone ALL IN because they see a real chance of permanently changing the course of this disease. And they know that the tomorrows that will be gained as a result — for everyone affected by chordoma — are the most precious gift of all. Continue reading
Do you have questions about chordoma and chordoma treatment that you’d like to ask chordoma experts? Join us for an Ask the Experts webinar! Continue reading
Our 2019 Annual Report details how a confluence of recent research advances have cleared a path to identify existing treatments that could help chordoma patients in the near-term, and, incredibly, created a line of sight to the first treatments that strike at the Achilles’ heel of chordoma. It also tells how many in our community have rallied behind our recently-launched $16M ALL IN campaign to bring these unprecedented research opportunities to fruition, while at the same time helping patients and families confront chordoma with confidence and get the best care possible along every step of their journey. Continue reading
Thanks to advances in research, improvements in care, and access to more treatment options, more people than ever before are living with, through, and beyond chordoma. To more holistically support anyone who has been affected by chordoma, we are proud to announce the launch of a new Chordoma Survivorship Initiative. Continue reading
COVID-19 has paused many aspects of life, but it can’t pause cancer or the support that patients and caregivers need. … Continue reading