Chordoma Foundation

Category Archives: Latest Updates


Addressing physical challenges associated with sacral chordoma: Bladder function

Sacral chordoma patients often experience side effects that impact the critical functions in the pelvis, including bowel, bladder, and sexual. While these functions are critical to the quality of every person’s life and health, they often aren’t discussed publicly. Our intent with these blog posts is to take the embarrassment out of these discussions and address real questions from real chordoma patients in a candid, direct and — we believe — helpful and hopeful manner. Continue reading

2021 Virtual Chordoma Community Conference: Coping with anxiety, depression, and grief

During the webinar, Jennifer Bires, LCSW, OSW-C, Executive Director of Life with Cancer and Patient Experience at Inova Schar Cancer Institute, and Megan Whetstone, LCSW, an oncology social worker with the Kelsey-Seybold Cancer Center, discussed: common mental health challenges experienced by cancer survivors and co-survivors, ways to manage and cope with these challenges, what type of support is available, and how to get help for yourself or your loved one.
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