Meet the heart and soul of Chordoma Connections: Our volunteer moderators
In the nine months since it launched, nearly 600 patients and caregivers worldwide have joined the conversation in Chordoma Connections, … Continue reading
Category Archives: Latest Updates
New tools make community fundraising easier (and more fun) than ever
From the beginning, the Foundation’s story has been one of patients and families coming together to accomplish the improbable. And … Continue reading
2017 Annual Report highlights unprecedented progress
We are excited to share our latest Annual Report, which details the real and powerful impact that recent advances in … Continue reading
Community fundraisers turn passion into action
As a patient-driven organization, our success depends on the initiative of supporters like you. Over the years, our amazing community … Continue reading
Five new members join the Community Advisory Board to help guide patient programs and services
Originally formed in 2016, the Chordoma Foundation’s Community Advisory Board (CAB) has served as a critical source of input and … Continue reading
Expert Answers Webinar recording now available on YouTube
Making a decision about clinical trial participation On Thursday, June 7, the Chordoma Foundation hosted our first Expert Answers Webinar. … Continue reading
New clinical trial testing targeted therapy, afatinib, opens in Europe
This is a derivative of “Leiden University Medical Center” by Dmflan and is licensed under CC BY 3.0 A new Phase … Continue reading
Promising chordoma-specific immunotherapy trial now open at two sites
Launched last spring, a Phase 1 clinical trial studying the safety and initial effectiveness of the immunotherapy drug nivolumab with and … Continue reading
Top 10 Takeaways from 6th International Chordoma Research Workshop
In March of 2018, 140 doctors and scientists from more than ten countries and 70 institutions braved a nor’easter to … Continue reading
Highlights from 2018 International Chordoma Community Conference
Our 2018 International Chordoma Community Conference in Boston brought together more than 100 patients, family members, doctors, and researchers from … Continue reading