Definitive textbook on chordoma gets an update
“Significant advances have occurred in the last two decades, both in our understanding of the basic pathology and molecular biology … Continue reading
Category Archives: Healthcare Improvement
First clinical guidelines for management of recurrent chordoma published in the Annals of Oncology
In February of 2015, patients, doctors, and caregivers gained a valuable new resource in the fight against chordoma when the first-ever … Continue reading
Celebrating 10 years of uncommon progress
As we celebrate the Chordoma Foundation’s 10-year anniversary this month, we want to share our sincere thanks to everyone who … Continue reading
CF represented at VP Biden’s national Cancer Moonshot summit
On June 29, the Cancer Moonshot initiative hosted a summit in Washington, D.C. as part of a national day … Continue reading
Highlights from the 2016 International Chordoma Community Conference
On July 16, more than 120 patients and caregivers from five countries and 21 states gathered in Boston for the … Continue reading
New Community Advisory Board formed to help guide the Foundation’s programs and services
As an organization built by patients for patients, we are constantly seeking to enhance the way the Foundation serves and … Continue reading
Expanding our impact in 2016: A note from the Board
By Andrew Schoelkopf, Chair, Chordoma Foundation Board of Directors On behalf of the Chordoma Foundation Board of Directors, I wanted to … Continue reading
New educational resource: Expert Recommendations for the Diagnosis and Treatment of Chordoma
The diagnosis of any new medical condition is daunting. When you are diagnosed with a condition as uncommon as chordoma, … Continue reading
Second international consensus group meeting defines best practices for treating recurrent chordoma
By any measure, chordoma is a difficult disease to manage. With state of the art treatment from experienced physicians, many … Continue reading
First clinical guidelines for chordoma treatment published in The Lancet Oncology
This month, chordoma patients, caregivers, and physicians got a powerful new resource to aid in the fight against chordoma with … Continue reading