An experimental treatment changed the life of a courageous young chordoma survivor
Please accept marketing-cookies to watch this video. Watch this video on YouTube » As the youngest child in a family … Continue reading
Category Archives: Featured Champions
Peer power: Two Guides, dozens of life-changing relationships
Since 2011, our Peer Connect Program has united the chordoma community and fostered life-changing relationships between individuals affected by this … Continue reading
New initiative in Canada advances research, builds community
Since its inception, the Chordoma Foundation has made great strides toward optimizing chordoma standard-of-care guidelines and initiating critical research in … Continue reading
Maureen Schroer: Helping others to find their silver lining
It was an average Friday in March of 2012, and Maureen Schroer was rushing through her typical weekday routine. After … Continue reading
Surprise birthday celebration brings together friends, family, and fire-breathing belly dancers to raise money for chordoma research
It wasn’t a typical birthday party. When Daniel Kalenov arrived for a celebration of his 40th, he knew he’d be … Continue reading
Grateful for life-saving support, couple embarks on mission to champion research for others
Michael and Noreen Potempa had just retired and were looking forward to the next chapter in their lives together when … Continue reading
To counter “helpless” feeling, wife joins the effort to solve the chordoma puzzle for her husband and other families
When Brittany and Todd Fuchs first started dating, Todd’s battle with chordoma felt like a part of his past. He … Continue reading
In Cameron’s memory: Family continues to raise money and awareness after chordoma takes their young son
Cameron Riccomini was nuts about sports: his favorite birthday party was one where he and his friends played dodgeball and … Continue reading
You can’t let a disease run your life
Jeff Schilling credits his wife, Erin, for the philosophy he lives by. “She always drums it into my head that … Continue reading
European liaison expands Foundation’s reach overseas
When Hans Keulen was first diagnosed with skull base chordoma in 2009, he searched for organizations near his home in … Continue reading