During our recent Ask the Experts webinar, we were joined by a panel of chordoma experts who provided helpful and informative answers to questions from chordoma patients and their loved ones. We think you’ll find the information shared in the Ask the Experts webinar is a great resource. Continue reading
Join us in going ALL IN for chordoma by making a gift of whatever you can contribute in these challenging times. Joel and Shari Beckman have gone ALL IN because they see a real chance of permanently changing the course of this disease. And they know that the tomorrows that will be gained as a result — for everyone affected by chordoma — are the most precious gift of all. Continue reading
Do you have questions about chordoma and chordoma treatment that you’d like to ask chordoma experts? Join us for an Ask the Experts webinar! Continue reading
Our 2019 Annual Report details how a confluence of recent research advances have cleared a path to identify existing treatments that could help chordoma patients in the near-term, and, incredibly, created a line of sight to the first treatments that strike at the Achilles’ heel of chordoma. It also tells how many in our community have rallied behind our recently-launched $16M ALL IN campaign to bring these unprecedented research opportunities to fruition, while at the same time helping patients and families confront chordoma with confidence and get the best care possible along every step of their journey. Continue reading
Before Chuck Mainey was diagnosed with chordoma in 1999, he and his family — like many affected — had never heard of it. … Continue reading
The ongoing challenges presented by the COVID-19 pandemic have interrupted and altered medical research across the globe. While some scientists have had to halt their studies abruptly, others can forge ahead thanks to virtual options. The chordoma community is one of many rare disease communities invited to participate in one such study, the Natural History Study of Rare Solid Tumors, currently underway at the National Cancer Institute (NCI). Continue reading
The Chordoma Foundation (CF) and The Mark Foundation for Cancer Research (MFCR) announced today a two-year, $1.4M partnership with a team of researchers at three institutions to develop new treatments for chordoma, a rare and difficult-to-treat bone cancer. The researchers will focus on creating the first drugs to inhibit a protein known as brachyury. Continue reading
We’re excited to announce that the Chordoma Foundation and the Broad Institute of Harvard and MIT recently embarked upon the most thorough effort yet to identify existing drugs with the potential to provide new treatments for chordoma patients. Continue reading
We’re delighted to share that, for the second year in a row, the National Cancer Institute (NCI) is inviting pediatric and young adult patients to participate in a chordoma-specific clinic at the National Institutes of Health (NIH) Clinical Center in Bethesda, Maryland. The clinic will take place on April 29 – May 1, 2020. Continue reading