Chordoma Foundation

Author Archives: Chordoma Foundation Team

Chordoma Foundation Team

The Chordoma Foundation works to improve the lives of those affected by chordoma - a rare and tenacious bone cancer - and is leading the search for a cure. Started in 2007 by patients and families determined to create a better future for those affected by this devastating disease, the Foundation offers a suite of services to help patients get appropriate treatment, overcome practical challenges, and get emotional support. To advance the search for a cure, the Foundation strategically initiates and funds research, facilitates communication and collaboration among researchers and drug companies, and supplies the research community with critical biological resources.

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2019 Annual Report: Going ALL IN

Jul 20 2020 by Chordoma Foundation Team

Our 2019 Annual Report details how a confluence of recent research advances have cleared a path to identify existing treatments that could help chordoma patients in the near-term, and, incredibly, created a line of sight to the first treatments that strike at the Achilles’ heel of chordoma. It also tells how many in our community have rallied behind our recently-launched $16M ALL IN campaign to bring these unprecedented research opportunities to fruition, while at the same time helping patients and families confront chordoma with confidence and get the best care possible along every step of their journey. Continue reading

Chordoma community invited to participate in the Natural History Study of Rare Solid Tumors

Apr 29 2020 by Chordoma Foundation Team

The ongoing challenges presented by the COVID-19 pandemic have interrupted and altered medical research across the globe. While some scientists have had to halt their studies abruptly, others can forge ahead thanks to virtual options. The chordoma community is one of many rare disease communities invited to participate in one such study, the Natural History Study of Rare Solid Tumors, currently underway at the National Cancer Institute (NCI). Continue reading

The Chordoma Foundation and The Mark Foundation for Cancer Research fund open-source research to accelerate drug discovery following recent breakthroughs

Feb 28 2020 by Chordoma Foundation Team

The Chordoma Foundation (CF) and The Mark Foundation for Cancer Research (MFCR) announced today a two-year, $1.4M partnership with a team of researchers at three institutions to develop new treatments for chordoma, a rare and difficult-to-treat bone cancer. The researchers will focus on creating the first drugs to inhibit a protein known as brachyury. Continue reading

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