Author Archives: Chordoma Foundation Team
Carlie’s Uncommon Story: Finding joy in the small things
Kate’s Uncommon Story: I’ve met wonderful people across the world
Georgia’s Uncommon Story: The best doctor in the world
Gifts of hope: How to dedicate your birthday to progress against chordoma
Each year, members of our community dedicate their birthdays to the Chordoma Foundation with virtual fundraisers, collectively raising many thousands of dollars to advance chordoma research and support patients. We invite you to join this committed group of birthday fundraisers — it’s a piece of cake. Continue reading
David’s Uncommon Story: We knew we were in the right place
Craig’s Uncommon Story: A patient needs to be vigilant
Barbara’s Uncommon Story: Nothing the surgeon had seen before
James’ Uncommon Story: Support from many sources
Five tips from young survivors
For Alex Casanave, Julia Lisena, and Emily Sommer, the journey from diagnosis to survivorship was different, but it led them all to support other young patients and families through our Peer Connect program, as Peer Guides (Alex and Julia) and trainees (Emily). Continue reading