The world shifted under my feet: Elizabeth and Justus’s Uncommon Story
“It was the longest, most grueling day of my life. But we trusted that Justus was right where he needed to be and had faith.” Continue reading
“It was the longest, most grueling day of my life. But we trusted that Justus was right where he needed to be and had faith.” Continue reading
Fifteen-year survivor Adriane has always had a gift for her sharing wisdom with other patients. Continue reading
“You have bad moments in life, and good moments in life. The good moments will come again. It may be your turn to be unlucky, but you can get to the other side.” Continue reading
The fastest path to better treatment options in the near-term for patients in need is through existing drugs. Our Drug Repurposing Initiative is systematically identifying these treatment options, with the goal of rapidly initiating new, well-justified chordoma clinical trials. Continue reading
Thanks to the generosity of our supporters, significant advances for chordoma patients are being made along multiple paths. Continue reading
Chordoma patients with advanced or metastatic chordoma may soon be eligible to enroll in a new clinical trial testing the FDA-approved cancer drug cetuximab. Continue reading
Our Executive Director, Josh Sommer, hosted a webinar to highlight recent advancements in chordoma research and improvements in the patient experience, as well as the many exciting opportunities now in front of us. Continue reading