WE ARE HERE TO HELP
If you or someone you care about is dealing with chordoma, our Patient Navigation Service can answer your questions, explain treatment options, help you find qualified doctors, and more.
Leading the search for a cure
We proactively and strategically initiate, manage, and fund research across the globe to accelerate the development of effective treatments and ultimately a cure for chordoma.
What you should know
Patients & Families
Learn about chordoma, find helpful resources, take action to find a cure
Researchers
Connect with colleagues, access reagents and data, find funding
Healthcare Professionals
Information for managing chordoma & opportunities to advance research
Chordoma Foundation Updates
Announcing $1.5M Pediatric Chordoma Initiative
Enrollment temporarily suspended for Epizyme’s tazemetostat trial
New funding opportunity offered in partnership with the Canadian Cancer Society
Uncommon Awards presented for remarkable contributions
Learn from Experts
-
What are the most important things a chordoma patient should know?
-
What should chordoma patients look for in a treatment team?
Featured champion
Smith Anderson team
Behind everything the Foundation has accomplished in the past decade is nearly half a million dollars of pro-bono services from our dedicated legal team at Smith Anderson, LLP.
Featured research
Chordoma Genome Project
Results of the Chordoma Genome Project provide the most comprehensive insights to date about how chordoma forms, and important clues about how it could be treated.
Chordoma Biobank
Contribute to Our Biobank
Patient tumor tissue is critical for research needed to find a cure. Our Biobank enables patients to help advance research by donating excess tumor tissue.