Privacy Policy
Privacy and Security
Privacy and security of information are high priorities for us. The Chordoma Foundation has an ethical and legal
obligation to respect the privacy of all participant information. Any personally identifiable information that
we collect from you will not deliberately be shared with any individual outside of the foundation without your
consent.
While we strive for security, no internet transmission is ever completely secure or error-free. Therefore you
should carefully consider what personal information to share on our website. Once the Chordoma Foundation
obtains information that is intended to be treated as confidential, we use our best efforts to keep that
information secure from third parties. We cannot guarantee that private information sent to us will never be
seen by an unrelated third party.
Operation of any website involves the risk that it may be infected by viruses, defaced, or otherwise altered
by computer programs. Please use our site at your own risk. We provide links and access to other websites for
your convenience. We do not guarantee the availability, accuracy, or security of those outside sites, nor do we
endorse them.
Membership Policy
Membership in the Chordoma Foundation, and the use of some website features, is restricted to chordoma patients
(and their associates), researchers, and health professionals. We ask for information that will help verify
that potential members meet membership criteria. We may restrict access to some parts of our website meant solely
for verified researchers and health professionals. Information provided by professional members will be kept
confidential to the best of our ability.
*No refunds are available for any donations or payments made through credit card processing.