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Profiles in Courage
As everyone whose life has been affected by chordoma knows, it is a challenging, confusing, lonely, and often frightening disease. It is a disease that has, until recently, received little public attention, and was barely known to the public and to the research community. We hope that these candid stories of courageous patients and their families will shed light on what it means to live with, survive, fight against, or die from this disease. This is the human side of the cancer called chordoma.
A new story will be posted every month
On August 1, 2008, Ray Underhill passed away from complications with chordoma, not even two years after his initial diagnosis. He was 45 years-old. The former skateboard pro left behind Kerry, his wife, their two children, Keaton (13) and Olivia (8), and a laundry list of friends stretching from North Carolina to California. In this profile Kerry talks candidly about Ray's philosophy, their intense battle with chordoma, finding respite in Tony Hawk’s guest house and her hopes for the future.
Read Ray's Story »
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12/05/08
Major breakthrough for Chordoma published by CF-funded researcher
see article »
12/02/08
First Prize Awarded For New Chordoma Cell Line
see article »
11/20/08
Four New Chordoma Research Grants Awarded
see article »
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