A growing number of European physicians and researchers are taking an interest in chordoma, however treatment and clinical research for chordoma in Europe is largely fragmented and uncoordinated between different countries. Due to the rarity of chordoma (1:1,000,000) and complexity of treatment, multi-institutional and multidiscplianry collaboration is necessary both for optimal patient care and for recruiting large enough groups of patients to conduct clinical trials.
To help unite physicians and researchers in Europe and foster greater coordination on a European level, the Chordoma Foundation is partnering with the Istituto Nazionale Tumori, Milan to host the first European meeting on Chordoma. Specifically the meeting will explore formalizing a collaboration among chordoma treatment centers in Europe under the “European networks of Excellence” program for rare diseases.
On Thursday June 21 physicians and researchers meet in Amsterdam for a one day round table conference to discuss the possibilities of such a network and other opportunities to improve treatment for chordoma patients.
Participation is by invitation. Physicians and researchers interested in attending the conference can request an invitation by sending an email to the Foundation’s European Liaison, Hans Keulen, at hans@chordoma.org