Chordoma is a relentless and difficult to treat bone cancer that occurs in the head and spine in people of all ages. No drugs are approved to treat chordoma and the average survival after diagnosis is 7 years; a statistic we are determined to improve.

 

The Chordoma Foundation is an international nonprofit organization working to improve the lives of chordoma patients by accelerating the development of effective treatments, and by helping patients to get the best care possible. Guided by a comprehensive research roadmap, the Foundation initiates and funds research, facilitates information exchange and collaboration among researchers, and provides scientific resources needed for research.

 

 

» Fund results-oriented research
We proactively fund research projects identified by our Scientific Advisory Board as strategic priorities for advancing the development of new treatments for chordoma.

 

» Provide scientific resources
We create, collect, store, and distribute the information and biological materials that researchers need in order to study chordoma and develop new treatments.

 

» Facilitate communication and collaboration
We connect physicians, scientists and companies from across the world to share information and collaborate on projects they can only achieve together.

 

» Guide patients to obtain quality care
We provide accurate information about treatment options and clinical trials, refer patients to experienced doctors, and match patients with trained peer-support mentors.

 

“Patient groups like the Chordoma Foundation are one of the forces pushing academics and drug companies to start sharing more data in the hopes of speeding up medical innovation.” – Forbes, June 2, 2010