WE ARE HERE TO HELP
If you or someone you care about is dealing with chordoma, our Patient Navigation Service can answer your questions, explain treatment options, help you find qualified doctors, and more.
Leading the search for a cure
We proactively and strategically initiate, manage, and fund research across the globe to accelerate the development of effective treatments and ultimately a cure for chordoma.
What you should know
Chordoma Foundation Updates
Watch the stories
“We want to support the Foundation so it can help other families facing this challenge,” says Noreen Potempa, wife of a chordoma patient.
While researching bone and soft tissue tumors, Professor Flanagan discovered something unique in chordomas: consistently high expression of a protein called brachyury, now the gold standard marker for diagnosing chordoma.
Patient tumor tissue is critical for research needed to find a cure. Our Biobank enables patients to help advance research by donating excess tumor tissue.